Privacy

The benefits from this project will greatly outweigh the risks to any participant. The physical risk of swabbing is less than shaking a friend's hand.


Before proceeding with this project, please read the sample project “consent forms”:


•    Sample adult consent form
•    Sample adolescent consent form
•    Sample child consent form
•    Sample guardian consent form


Only bacterial sequences will be analyzed; therefore, your human DNA code will not be sequenced or revealed.


Everyone's privacy will protected by making all of the samples completely ANONYMOUS upon receipt by our laboratory. Each sample will be give a unique alphanumerical code for our bookkeeping purposes, and only this code will be available to researchers who work with your sample.


Data will be de-identified because each sample will have a unique ID-number (for example NSU-SD14-00001) associated with it.


All ID numbers will be linked back to a spreadsheet with sample information that contains ONLY demographic information such as sample source location, individual gender and age (see example below), and an email address so we can send you back your results.  However no personal information will be on this sheet. Personal demographic information will be retained only for those who agree to be in the wider study and to link to microbiome sample results.


We will give you the option to allow us to keep some demographic information (your geographic locale, ethnic background, age, gender etc.) as part of the study. However, all other personal identifying data (name, address, contact information) linked to your code will not be stored in any database or released on the internet in any way. This contact information will kept by the PI in a secure, locked container.


All human-subject aspects of the project have been approved by the Institutional Review Board at the Nova Southeastern University and all animal aspects by the Institutional Animal Care and Use Committee.   Copies of the appropriate consent forms can be viewed at the following.    Click [LINK] for some FAQs.
http://wellandgood.com/2013/07/25/meet-the-millions-of-tiny-organisms-that-call-you-home/



The Skin Deep Microbiome Project